Improving the experience of dementia and enhancing active life: a longitudinal perspective on living well with dementia (the IDEAL-2 study)

The IDEAL-2 programme will provide ground-breaking longitudinal evidence to underpin the development of novel interventions and initiatives to improve quality of life for people with dementia. Investigators: Clare, L., Jones, R.W., Morris, R., Matthews, F., Rusted, J., Hughes, J., Victor, C., Knapp, M., Jones, I.R., Litherland, R., Hindle, J.V., Quinn, C., Martyr, A., Nelis, S.M., Ballard, C., & Hillman, A. (2018-2022).

IDEAL Cohort

IDEAL-2 will build on the unique resource of an established national longitudinal cohort focused on living well with dementia, the IDEAL cohort. IDEAL-2 will follow the IDEAL cohort, including additional participants with rare dementia subtypes, for three further time-points to gain an understanding of their experiences over a total 6-year period as the condition progresses.

For those who took part in IDEAL you will be contacted to be involved in IDEAL-2, and we hope you will continue to engage with the studies.

IDEAL-2 aims to:

  1. Identify key indicators of quality of life as dementia progresses.

  2. Ensure meaningful evaluation of living well.

  3. Include the perspective of people with severe dementia.

  4. Include the perspective of people from ‘seldom heard’ groups: people from black, Asian and minority ethnic (BAME) communities and people living with undiagnosed dementia.

  5. Outline the determinants of service use patterns and costs.

  6. Create an action plan for policy and practice development.