#ESRCfestival event 'Dementia: Personal Experiences and Cultural Representations'

Register now for this event on November 7th 2017

Booking has now opened for the above event. Join us for what promises to be a dynamic, informative and thought-provoking Festival of Social Sciences event on the topic of dementia. 

To read more about the event or to book to join, please go to the Exeter Phoenix webpages

Tuesday, 7th Nov 2017 | 5-7pm | Free (but booking necessary)

Venue: Exeter Phoenix, Gandy Street, EX4 3LS, Exeter

 

Alzheimer's Europe Conference October 4-5th 2017

IDEAL Co-I Dr. Catherine Quinn recently presented a poster ‘Adjustment and representations in dementia’ at the Alzheimer’s Europe in Berlin, October 2017

See the poster AE Poster October 2017

 

IDEAL participant on ITV news

September 21st 2017

Annie was also interviewed for ITV News - watch the interview here

As part of World Alzheimer's Day 2017 - IDEAL Participant Annie urges the public to learn about NHS dementia research

Read more here

Mrs Panton

 

IDEAL 12-month follow-ups complete

Many thanks to our researchers throughout England, Scotland and Wales for completing the visits and to all those that took part. 

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Dementia singing group in Exeter

IDEAL Co-I Dr. Catherine Quinn discussed IDEAL research at the 'Remember that Song' Dementia Singing Group in Exeter

Find out more about this group here

 

IDEAL symposium at IAGG San Francisco

 

IDEAL co-investigator honoured for outstanding achievements in the study of ageing and society

At the British Society of Gerontology annual conference in Swansea Professor Christina Victor was honoured for her contribution to the public understanding of ageing. You can read more about the award and the research that Christina does here.

 

Alzheimer’s Society has announced that it has committed almost £2million to the University of Exeter, as part of its biggest-ever single investment in dementia care research

Professor Linda Clare, of the University of Exeter, who leads the research programme, said: “It is vitally important that people with dementia are able to have the best quality of life possible. The Centre of Excellence will support that urgent priority, and our research will significantly improve our understanding of what factors influence the ability to live well as the disease progresses. This will help us to develop strategies and initiatives that will make a real improvement for people living dementia and their families at different stages of their condition.”

The University of Exeter’s research grant will fund a second phase of a large-scale national study entitled Improving the Experience of Dementia and Enhancing an Active Life (IDEAL). Running since 2014, it aims to understand how to help people to live well with dementia by taking into account the experiences of people with dementia and their carers over six years.

Read more here

 

‘Living well with dementia has become a key focus of policy’

Interview with IDEAL Lead Prof. Linda Clare, Professor of Clinical Psychology of Ageing and Dementia at the University of Exeter.

 

Dementia Awareness Week 2017

IDEAL will be represented at two Dementia Awareness Week Activities:

1). Living Well with Dementia - Wednesday May 17th 2017 London

To mark Dementia Awareness Week, we will host a seminar will focus on promoting quality of life for people with dementia and their families and carers. We will also present our interactive public engagement activities, devised to increase awareness of the challenges faced by people with dementia. The program will include a presentation on Living Well with Dementia by Professor Christina Victor, Brunel University London

To register for the event click here

2). Tinted Lens: A Festival of the Mind, Memory & Ageing - Wednesday May 17th 2017 Cardiff

Celebrate Dementia Awareness Week by joining us at our relaxed Dementia Friendly screenings, engaging theatre and drop-in craft workshops, a Virtual Reality experience, guest speakers, stalls and much more. Everyone is welcome and you’ll be helping to challenge the social exclusion of people living with dementia, while also having a great time.

To find out more click here

Working family carers needed for new research study

Living well with dementia: implementing what we know

April 2017

IDEAL researcher Dr Alex Hillman organised this event held at Bangor University. This event was targeted at early career researchers working in the field of dementia research. Dr Catherine Quinn and Hannah Scott presented on the IDEAL Project.

 

Interviewing people with dementia and their caregivers

February 2017

IDEAL Co-Investigator Dr. Catherine Quinn gives some tips on working with people with dementia and carers. See: Quinn, C. (2017). Conducting interviews with people with dementia and their caregivers. SAGE research methods cases. doi: 10.4135/9781526404855.

 

IDEAL in-depth interviews

January 2017

Read our blog on the qualitative part of the IDEAL study: The IDEAL study: finding strategies to live well with dementia

2016

ALWAYs group member publishes 'Walk the Walk, Talk the Talk' December 2016

Keith Oliver’s latest book—‘Walk the Walk, Talk the Talk’—compiles his reflections on different stages and aspects of his life, from his early teaching career in the UK, to moving his family to Australia, and from the intricacies of living well to engaging in national discussions around dementia. His own reflections are combined with the thoughts and accounts of a wide range of his ‘professional friends’, friends, and loved ones to form an engaging narrative of Keith’s life and loves to date.

Keith has a diagnosis of young on-set Alzheimer’s and his drive to shape research and policy in the area and improve experiences for those living with a dementia comes out strongly in the book. Keith’s friend and colleague (as a KMPT Dementia Service User Envoy), Chris Norris, remarks that “Without doubt, the time has come for action to improve the lives of those affected with dementia. Organisations and the NHS now need to not just talk the talk but take action and walk the walk. Keith does and through his leadership and inspiration, many others now do.”

‌As put by Rachael Litherland who has worked with Keith in her capacity as a co-director of Innovations in Dementia, “dementia is only one side of his [Keith’s] life – and he is a great example to me, and to other people with dementia, about the need to put energies into other parts of one’s life – walking on the beach, helping school children with their reading, going to the theatre or cinema, writing (and inspiring others to do so).”

 ‌To read more, you can get your hands on the book through the following routes:

• Soon to appear on the Alzheimer's Society online shop (all proceeds to the Alzheimer's Society)- £5 (plus p and p)
• Waterstones shops- £8 (£5 of which to the Alzheimer's Society)
• From the author at meetings and conferences- £5 (all money to Alzheimer's Society and Innovations in Dementia)

 

Recognition for one of the many IDEAL and GREAT research network staff September 2016

Congratulations to Alison Culverwell for her Highly Commended Award For Research Local PI for IDEAL at Kent and Medway NHS & Social Care Partnership Trust.

 

Dualities of dementia accounts: Biographical reconstruction and narrative economies September 2016

IDEAL Co-Is Alexandra Hillman and Ian Rees-Jones presented at the British Sociological Association’s Medical Sociology Group’s Annual Conference in Birmingham. https://www.britsoc.co.uk/events/medsoc

 

IDEAL Co-I Dr. Catherine Quinn contributes to new book on 'Positive Psychology Approaches to Dementia' August 2016

Dr. Catherine Quinn has authored a new book chapter entitled 'Positive Experiences in Dementia Caregiving' published in In C. Clarke & E. Wolverson (Eds.), Positive Psychology Approaches to Dementia (pp. 232- 252). London: Jessica Kingsley Publishers. Publication date 18th August. https://www.amazon.co.uk/Positive-Psychology-Approaches-Dementia-Clarke/dp/1849056102

 

IDEAL study starts the final wave of T3 data collection August 2016

For those who entered the IDEAL study in 2014 we will now commence the final phase of visits (T3 24 month follow-up). We look forward to seeing as many people as possible and we appreciate you taking time to speak with the researchers again. This phase will continue until August 2018.

 

IDEAL will be at the UK Dementia Congress 2016 August 2016

We will be hosting a workshop at the 11th UK Dementia Congress in Brighton. Title: What does living with dementia mean? Learning from people with dementia and carers through the IDEAL study. This event will be facilitated by our ALWAYS (Action on Living Well: Asking You) network members. Please come along and join the discussion. http://www.careinfo.org/wp-content/uploads/2016/01/2016UKDC12pp_v2sb-lo-res6.pdf

 

IDEAL reaches recruitment target July 2016

We are pleased to report that recruitment is now complete. We would like to express our sincere gratitude to over 1500+ individuals and their friends and family who have taken part so far. Thanks to the researchers at our various sites who have made this happen.

 

Need to improve public understanding of dementia June 2016

IDEAL Lead Prof. Linda Clare describes the urgent need to improve public understanding of dementia:

http://www.bps.org.uk/news/urgent-need-improve-public-understanding-dementia

 

Findings from the IDEAL project June 2016

Findings from the IDEAL project Better Understanding of Caregivers Perceptions of Dementia Could Improve the Level of Support They Are Offered

http://www.wiserd.ac.uk/files/6014/6886/0438/WISERD_News_June_2016_Issue_14.pdf

 

IDEAL participant on Panorama June 2016

BBC Panorama filmed Chris Roberts and his family over 18 months and as they try to live well with dementia. The moving and poignant documentary follows his dementia journey as he becomes more and more involved in raising awareness of dementia at national and international conferences. It also shows a brief segment where he is filmed taking part in IDEAL, where he is assessed by an IDEAL co-investigator, Dr Anthony Martyr. The full programme is available here to UK viewers for the next 12 months. A BBC webpage with clips of the show is available here.

 

Dementia Awareness Week May 2016

During Dementia Awareness Week 2016 Dr. Alex Hillman discussed IDEAL as part of the expert panel discussion post the screening of Away from Her.

https://www.alzheimers.org.uk/remembertheperson

 

IDEAL now on Twitter January 2016

The IDEAL project twitter page is now live: @IDEALStudyTweet

 

IDEAL Recruitment January 2016

We are pleased to report that recruitment to the project now exceeds 1,000 people with dementia. Thank you to everyone who has agreed to take part so far. We aim to finish recruitment into the project in June 2016.