New IDEAL Programme newsletter available

25 June 2019

If you are interested in finding out more about the IDEAL programme of work, please read our newsletters. We have just released a new newsletter which updates you on current progress with the study, the work we are doing to co-produce a quality of life measure with people living with dementia and an article from our researchers in Kent.

IDEAL Programme June 2019 newsletter image

IDEAL co-investigator awarded 

06 December 2018

Dr John Hindle, a Consultant Physician for the Care of the Elderly in North Wales, has been awarded the 2018 Marjory Warren Lifetime Achievement Award from the British Geriatrics Society. This award recognises his dedication to those living with movement disorders across North Wales and for setting up the first movement disorder clinic in Wales 28 years ago. 

You can read more about John and the award here.

IDEAL Programme London Event 

26 November 2018

We are hosting a symposium on Wednesday 27th November with key leaders from the public, private and third sectors. We will be disseminating findings from the IDEAL programme with the aim to agree goals and actions to help realise the government’s ambition for a society where people affected by dementia are able to 'live well'.

We will be tweeting from the event. Use the hastag #IDEALprog2018 to follow updates of the day via our twitter page.

IDEAL-2 Protocol published

15 November 2018

The protocol for IDEAL-2 study ‌has been published in BMC Public Health. It is open access, so can be accessed free of charge.

 IDEAL-2 Protocol.jpg

UK Dementia Congress 2018

7 November 2018

Linda Clare (IDEAL chief investigator), Christina Victor (IDEAL co-investigator), Ian Beesley (phtographer) and many of the ALWAYs group presented at the UK Dementia Congress 2018 on 7th November. Around 60 people attended and heard more about the work of the IDEAL programme, linked ALMO project, and the benefits of having a dedicated PPI group fully involved within the research study.


Health services must address multiple conditions in dementia

8 November 2018

Read the latest IDEAL publication 'The impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study' click here 

National Institute for Health Research blog

23 October 2018

The NIHR, who jointly fund IDEAL with the ESRC, have written a blog highlighting the importance of longitudinal studies and have used IDEAL as an example. It also includes an interview and video with Annie Panton a person with dementia who takes part in IDEAL.

The blog can be found here.

2018 Festival of Social Science

10 October 2018

Booking is now open for our ESRC Festival of Social Science free event on 6th November to be held at Brunel University. Please join us to learn more about the IDEAL programme from Professor Christina Victor and our creative arts-based A Life More Ordinary project from artist Ian Beesley.

Read here for more details of the event and how to book your free place.

New carer quality of life measure released

18 September 2018

A new questionnaire is now available to help clinicians, support groups, charities and academics assess and measure the quality of life of people caring for someone with dementia. The design of the measure - called SIDECAR (Scales measuring the Impact of DEmentia on CARers) - included information from over 600 carers, some of whom took part in IDEAL time 3.

The SIDECAR tool can be freely accessed via the DECIDE project website where there is more information about how it can help improve the quality of life for dementia carers.

Thank you - IDEAL Time 3 completed

18 September 2018

We are pleased to report that we have finished all visits for people taking part in IDEAL at T3 (24 month after initial involvement).

Thank you to all the people who have taken the time to continue to take part, and thanks to all our 29 sites for making it happen!

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New MOOC on Dementia and the Arts

18 September 2018

IDEAL linked chapbook ‘Allotment of Time’ recommended reading as part of an exciting MOOC on  Dementia and the Arts: Sharing Practice, Developing Understanding and Enhancing Lives.

To sign up, and for more information, please visit

British Society of Gerontology 47th Annual Conference

1 July 2018


IDEAL will be represented at this conference next week at the University of Manchester - if you are attending come along to one of our IDEAL talks scheduled for Friday 6 Jul 2018: 13.00 - 14.30

Masterclasses in Dementia Research

22 June 2018

The Improving the experience of Dementia and Enhancing Active Life (IDEAL) study is pleased to announce the launch of two online masterclasses in dementia research.

  • Doing qualitative interviews with people with dementia and their carers/relatives: Tips, strategies and considerations
  • Involving people with dementia and carers in research: Recommendations from the Action on Living Well: asking you (ALWAYs) group

The online masterclasses are available to view now.

Research outside the NHS setting

28 May 2018

A podcast on conducting research in non NHS settings and featuring IDEAL Co-I Dr. Catherine Quinn is available to listen to now.  

How you can support people who have dementia to live well...

26 May 2018

Read IDEAL Co-I, Dr Anthony Martyr, Western Morning News article about how 'Many small things can make a big difference'

Do you live near York?

21 May 2018

If you live near York, please come and join us at York Train station at 12 noon on 23 May 2018 for the grand unfurling of a banner produced as part of the ‘A Life More Ordinary’ project. The banner’s theme is the ‘Right to a Grand Day Out’. It has been created by artists Ian BeesleyIan McMillan and Tony Husband and members of three DEEP (Dementia Engagement & Empowerment Project) groups - DEEP Vibes Scarborough, York Minds and Voices and Face it Together (FIT) in Bradford.

Here's how those with dementia can live a better life - read our review of the literature 

11 May 2018

Martyr A, Nelis S, Quinn C, Wu Y, Lamont R, Henderson C, et al. Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being, and life satisfaction in people with dementia. Psychological Medicine 2018.

  • Available to read here
  • Read a plain English summary here
  • See an infographic that visuals describes the findings here

Exeter exhibition for Dementia Action Week May 21-24

11 May 218

Please come to see the 'A Life More Ordinary’ Exhibition

  • University of Exeter, Forum 21st May (9am) to 23rd May (5pm)
  • Exeter Guildhall Shopping Centre 24th May (9am-5pm)

People whose lives have been affected by dementia have worked with well-known artists to create insightful images and poems that capture some of their experiences. Join us for Dementia Action Week 2018 as we exhibit some of their work.

ALMO Exhibition Flyer 2018

Blog: IDEAL 'chapbooks' and positive thinking

11 May 2018

Read our blog about how the artists’ ‘chapbook’ encourages positive thinking about dementia.

May 2018

Dualities of dementia illness narratives and their role in a narrative economies



Blog: Day in the life of a researcher

Dr Catherine Quinn, gives us a glimpse into her work in her blog 'A day in the life of a researcher'.


From the Negative to the Positive 

8 Janurary 2018

'A Life More Ordinary' exhibition opens at Gallery Oldham with the launch of a new chapbook

The first exhibition produced as part of the 'A Life More Ordinary' project, linked to IDEAL, has now opened at Gallery Oldham. Ian Beesley (photographer), Tony Husband (cartoonist) and Ian McMillan (poet) held a series of workshops in Oldham with the Ragamuffins, a group of people with dementia, their partners and volunteers. Together they have produced an exhibition of images and poems created during the workshops exploring living with dementia along the theme of ‘From the Negative to the Positive’. The exhibition is accompanied by a new chapbook which can be viewed for free online here (PDF, 4.6MB). 'From the Negative to the Positive' runs from 8 January 2018 until 2 February 2018 at Gallery Oldham.