Meet the IDEAL programme team

Programme Co-Investigators

The IDEAL programme consists of two projects with the following Co-Investigators:

‘Improving the experience of Dementia and Enhancing Active Life: living well with dementia: the IDEAL study’

Investigators: L. Clare, I.R. Jones, C. Victor, J.V. Hindle, R.W. Jones, M. Knapp, M. Kopelman, R. Litherland, A. Martyr, F.E. Matthews, R.G. Morris, S.M. Nelis, J. Pickett, C. Quinn, J. Rusted, J. Thom (2014-2018)

‘Improving the experience of Dementia and Enhancing Active Life: A longitudinal perspective on living well with dementia: the IDEAL-2 study’

Investigators: L. Clare, I.R. Jones, R.G. Morris, F.E. Matthews, J. Rusted, J. Hughes, C. Victor, M. Knapp, I.R. Jones, R. Litherland, J.V. Hindle, C. Quinn, A. Martyr, S.M. Nelis, C. Ballard, A. Hillman (2018-2022)

The research team is led by the Research in Ageing and Cognitive Health (REACH) group based at the University of Exeter.

Alzheimer's Society is the UK’s leading dementia charity. They provide information and support, improve care, fund research, and create lasting change for people affected by dementia. They will support carers of people with dementia to influence this project and help to disseminate findings. Dr James Pickett represents the Society in IDEAL. Nicola Hart works as the IDEAL programme Research Translation Manager based in London.



The Brunel Institute for Ageing Studies (BIAS) aims to advance knowledge in the field of ageing with the aim of improving the quality of life and health of older people. Professor Christina Victorfrom Brunel University will lead on the impact and capacity development aims of the project and will contribute to the quantitative and qualitative work plans. Dr. Isla Rippon based at Brunel will work on impact related activity for IDEAL.

Professor Ian Rees Jones from the Wales Institute of Social & Economic Research, Data & Methods (WISERD) will lead on qualitative research and the integration of quantitative and qualitative findings. He will supervise a linked PhD studentship addressing dementia and social class. Dr Alexandra Hillman and Dr Josie Henley are the qualitative researchers for IDEAL based at Cardiff.

Innovations in Dementia CIC works nationally with people with dementia, partner organisations and professionals with the aim of developing and testing projects that will enhance the lives of people with dementia. Rachael Litherlandfrom Innovations in Dementia will support people with dementia to influence the project and help disseminate findings.

Professor Robin Morris, who is a neuropsychologist at the King's College Institute of Psychiatry, Psychology & Neuroscience, will collaborate on the components in the quantitative and qualitative work plan, including study design, analysis and research dissemination. Professor Michael Kopelman will contribute to study design and quantitative analysis.

Researchers from the Personal Social Services Research Unit (PSSRU) at the London School of Economics and Political Science, including Professor Martin Knapp and Catherine Henderson, will be involved in the health economics aspects of the project.

RICE (Research Institute for the Care of Older People) is a charity covering a wide variety of areas intended to advance the knowledge and treatment of the more serious conditions affecting older people, with a particular focus on Alzheimer's disease and other forms of dementia. Collaborators from RICE include Professor Julian Hughes and Professor Roy Jones.

Dr Catherine Quinn at the Bradford Centre of Applied Dementia Research provides expertise in caregiving research and is involved in both the qualitative and quantitative aspects of the study. She is co-leading the work-stream on people living with advanced dementia.

The Centre for Research in Ageing and Cognitive Health(REACH) at the University of Exeter is the lead centre for the IDEAL project. Professor Linda Clare is the chief investigator of IDEAL. Other collaborators include Professor Clive Ballard, Dr Anthony Martyr, Dr Ruth Lamont, Dr Claire Pentecost, Dr Rosalie Ashworth, Dr Barbora Silarova, Dr Sharon Savage, Professor Louise Allan, Dr John Hindle, Annette Wolske.

Professor Jenny Rusted from the School of Psychology will collaborate on components of the quantitative work plan. She will contribute to the capacity-building aims of the programme by managing a linked PhD studentship in association with Dr Henglien Lisa Chen from the School of Education and Social Work.

Dr Jeanette Thom from the School of Medical Sciences at the University of New South Wales will contribute to the quantitative work plan. Jeanette will focus on the role of physical activity in living well with dementia.

NWORTH (North Wales Organisation for Randomised Trials in Health), the Bangor Trials Unit, is a multi-disciplinary and multi-functional team with experience and expertise in healthcare research and clinical studies from initial idea generation through to final publication and dissemination. NWORTH will be responsible for data management and will collaborate on the quantitative work and research methodology.

Professor Fiona Matthews is a Professor of Epidemiology in the Institute for Health and Society at Newcastle University. Fiona will contribute to the quantitative work plan and analysis.