- We asked a number of people in the IDEAL project to take part in interviews. These commenced in 2016.
- People were invited for an initial interview and will be followed-up again for interview10-14 months later.
- Dr Alexandra Hillman conducted these interviews as a way of further understanding peoples’ experiences of living with dementia.
My name is Dr Alexandra Hillman, I am part of the research team working on the IDEAL study. I am based at Cardiff University and work withiin the Wales Institute for Social and Economic Research, Data and Methods (WISERD).
I have conducted research in a number of imporant areas:
- Exploring the social and ethical issues surrounding the diagnosis of dementia, and concerns of newly diagnosed people with dementia and their families.
- Seeking to improve dignity and dignified care of older people on NHS hospital wards, as well as highlighting the challenges facing older people being assessed and treated in A&E services.
- More recently I have been working with people with dementia, looking into whether social and ethical concerns are addressed alongside the treatment of the condition.
I look forward to meeting with you.
Dr Alexandra Hillman
Early themes from the interviews
We would like to thank everyone who agreed to take part in the piloting phase of the IDEAL interviews. From the interviews we were able to identify some suggestions of:
Enablers to living well
- Network of support & relationships
- Pace of life
Barriers to living well
- Being alone, lack of purpose
- Anxiety and risk of failure
- Uncertainty about the future