Dementia Carers Instrument Development (DECIDE)

  • DECIDE aims to develop a new questionnaire to measure the ways in which caring for someone living with dementia impacts on the needs and quality of life of the carer.
  • Through the DECIDE project we will improve our understanding of the needs of carers.
  • Using this knowledge we will develop a new reliable and valid measure, which can be used to assess the needs of carers of people with dementia who are living in the community, including those in sheltered or extra-care housing.
  • The project is led by Dr Penny Wright from the University of Leeds, and involves the IDEAL chief investigator Professor Linda Clare.

Further information can be found on the Patient Reported Outcomes Group website.