Published Papers

  • Members of the ALWAYs group, Litherland, R., Nelis, S.M., Quinn, C., Victor, C., Clare, L., & on behalf of the IDEAL project. (in press). Reflections on PPI from the ‘Action on Living Well: Asking You’ (ALWAYs) advisory network of people with dementia and carers as part of the IDEAL study. Dementia.
  • Nelis, S.M., Wu, Y.-T., Matthews, F.E., Martyr, A., Quinn, C., Rippon, I., Rusted, J., Thom, J.M., Kopelman, M.D., Hindle, J.V., Jones, R.W., & Clare, L. (in press). The impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study. Age and Aging.
  • Wu, Y.-T., Clare, L., Hindle, J.V., Nelis, S.M., Martyr, A., Matthews, F.E., & on behalf of the IDEAL study team. (in press). The impact of subtype diagnosis on living well with dementia and carers: results from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) study. BMC Medicine.

Published Papers:


Published Abstracts:

  • Martyr, A., Nelis, S.M., Quinn, C., Wu, Y.-T., Lamont, R.A., Henderson, C., Clarke, R., Hindle, J.V., Jones, I.R., Morris, R.G., Rusted, J.M., Thom, J.M., Victor, C.R., & Clare, L. (2017) Living well with dementia: a systematic review and meta-analysisAlzheimer's & Dementia13, Supplement, P1567–P1568. doi:

Published Papers:

Book Chapters:

Published Abstracts: 

  • Victor, C.R., & Clare, L. (2015). Living well with dementia: preliminary insights from the IDEAL study. The Gerontologist, 55 (Suppl 2), 592-593. doi: 10.1093/geront/gnv306.01
  • Clare, L., Quinn, C., Woods, R.T., & Jones, I.R. (2015). Understanding and adjusting to dementia: implications for how we talk to people about the condition. The Gerontologist, 55 (Suppl 2), 593. doi: 10.1093/geront/gnv306.03
  • Morris, R.G., Martyr, A., Nelis, S.M., Markova, I.S., Roth, I., Woods, R.T., & Clare, L. (2015). Being less aware of functional decline may preserve emotional well-being in people with dementia. The Gerontologist, 55 (Suppl 2), 593. doi: 10.1093/geront/gnv306.04
  • Victor, C.R., Pikhartova, J., & Woodbridge, R. (2015). Is loneliness a cause or consequence of dementia? The Gerontologist, 55 (Suppl 2), 593. doi: 10.1093/geront/gnv306.02
  • Jones, I.R., Victor, C.R., & Clare, L. (2015). Capitals, assets and resources: a framework for understanding the lived experience of dementia. The Gerontologist, 55 (Suppl 2), 593-594. doi: 10.1093/geront/gnv306.05
  • Jones, I.R. (2015). Social Class, Dementia, and the Social Imaginary of the Fourth Age. The Gerontologist, 55(Suppl 2): 742. doi:10.1093/geront/gnv377.01

IDEAL project protocol:

Associated Publications:

Newsletters and Bulletins:

  • Clare, L. (2014). Neuropsychology of older people workshop: assessment. The British Psychological Society, Division of Neuropsychology Newsletter, Summer, p.3
  • Clare, L. & Nelis, S. on behalf of the IDEAL study team. (2014). Improving the experience of dementia and enhancing active life: the IDEAL study. FPOP Newsletter, 128 (October), 11-13.
  • Jones, R. (2014). Improving the experience of dementia and enhancing active life: living with dementia - the IDEAL studyRICE Newsletter, Autumn, 38, p. 2.
  • Morris, R. G. (2014). The IDEAL project: Improving our understanding of dementia. The British Psychological Society, Division of Neuropsychology Newsletter, 13.3, p.5.